Parker had a busy day yesterday! Morning physical therapy appointment, then big boy school, then a visit to his pediatric orthopedic surgeon. We took x-rays of Parker’s hips and legs and Parker showed off his walking skills using his trusty walker for Dr. O.
We are keeping a close eye on Parker’s development. As he gets taller, his knees are turning in and his gait (manner of walking) is becoming more abnormal due to the spasticity caused by KIF1A Associated Neurological Disorder (KAND). Spasticity is an ongoing battle. Right now, we’re continuing to use physical therapy, bracing and Botox/Dysport injections to help Parker’s spasticity. Surgery may be in our future, but thankfully we aren’t at that point. Dr. O even said as Parker gets older, he may be able to use arm crutches instead of a walker to get around.
Of course Parker wooed everyone he came into contact with. I was especially happy to see a few other older patients smile when they saw Parker navigating the halls with a big grin.